Health Authority in Leipzig looks for individuals experiencing Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) to join a newly established self-help group
In Germany, a significant shift is underway in the understanding and treatment of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). This transformation is particularly evident in Leipzig, where a self-help group for individuals affected by ME/CFS is being established, and cutting-edge research is being conducted.
Recent research led by Prof. Carmen Scheibenbogen and Prof. Klaus Wirth in Germany proposes a "unifying model" for ME/CFS and Long Covid. This model, detailed in a 2025 book by Irish ME/CFS advocate Patrick Ussher, explains ME/CFS symptoms through interlinked physiological cycles involving autoimmunity, vascular dysfunction, and cellular energy failure. This comprehensive explanation offers a potential foundation for targeted treatments, marking a significant conceptual breakthrough in ME/CFS research globally[1].
Universities and hospitals in Leipzig and Erlangen are actively engaged in clinical research efforts. For instance, the University Hospital Erlangen's trial of the drug BC 007 found significant improvements in fatigue and post-exertional malaise (PEM) in ME/CFS patients[5]. Leipzig, with its strong biomedical research infrastructure, serves as a hub for such investigations, although dedicated ME/CFS clinical centers for diagnosis and treatment are still developing in university clinics.
The global DecodeME genetic study, which includes German patients, aims to identify DNA alterations linked to ME/CFS. This research could have implications for diagnosis and treatment development worldwide, including Germany[2].
For those seeking local care or research participation in Leipzig, university-affiliated hospitals and research groups connected to leading scientists like Prof. Scheibenbogen may be key contacts. A self-help group is set to be established in Leipzig, providing support for individuals affected by ME/CFS.
Interested parties can help set up the group by contacting the Health Department. Registration for the meeting can be done via email or phone. For more information, please visit [email protected] or call 0341/1236755.
Despite these advancements, it's important to note that very little is known about ME/CFS, leading to no foreseeable perspective in any direction. Daily life, routines, and life plans change drastically for those with ME/CFS, as even the slightest exertion can lead to extreme crashes. The syndrome affects approximately 600,000 people in Germany, and many individuals affected by Long or Post-Covid meet the diagnostic criteria for ME/CFS.
As research continues to progress, it's hoped that a cure or effective treatment for ME/CFS will be found, improving the lives of those affected by this debilitating condition. Until then, advocacy and patient networks are promoting greater awareness and resources across Germany.
- Germany's medical community, particularly in Leipzig and Erlangen, is actively involved in researching Chronic Fatigue Syndrome (ME/CFS), including collaborative projects such as the University Hospital Erlangen's BC 007 drug trial.
- The unifying model proposed by Prof. Carmen Scheibenbogen and Prof. Klaus Wirth in Germany connects ME/CFS symptoms to autoimmunity, vascular dysfunction, and cellular energy failure, offering potential for targeted treatments.
- Advocacy groups and self-help networks, like the one being established in Leipzig, play a crucial role in promoting mental health, health-and-wellness resources, and raising awareness for chronic diseases such as ME/CFS, a condition that affects approximately 600,000 people in Germany.
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